
‘Any cancer diagnosis is frightening — suddenly our mortality becomes very real’

About mesothelioma
When I was first diagnosed with terminal peritoneal mesothelioma in 2006, I couldn’t find a single positive story on the internet, which was utterly terrifying. If you, or someone you know, has mesothelioma, please know there are positive stories.
You are reading one, right now, and there are more on the websites below.
Before we go any further, be aware I am neither a doctor nor a scientist. In fact, I was so ignorant of our physiology that when I was first diagnosed I asked if I had prostate cancer (in case your knowledge of our anatomy is where mine was, women don’t have a prostate gland), and Mr Ind, my consultant, kindly told me that would indeed be rare, but it was not the cancer I had!
Since then, I have learned a lot about our physiology, and there are much better websites to find the science of our disease, mesothelioma:
https://www.mesothelioma.uk.com
So far in my research, the longest survivor I have come across is Paul Kraus, who lived with peritoneal mesothelioma for twenty-seven years. To find out more about Paul and other survivor stories, see:
https://www.mesotheliomahope.com/mesothelioma/prognosis/survivors/
https://www.mesothelioma.com/mesothelioma/prognosis/survivors/
More updates to follow…